Alright, it wasn't as bad as the title suggests, but it wasn't good either. The entire weekend leading up to yesterday was mentally draining. Friday night I had the most energy, allowing my best friend to cheer me up, but I was tired from surgery, still out of it, and wanting to sleep. Saturday was more of the same. I began to feel bad for my sweet fiance and all that he does for me. I look forward to gaining back some energy so I can make dinner or do some basic things around the house to alleviate stress for him.
Anyways, yesterday morning we left the house with our sweet, almost, 5 year-old and headed to my mother's to drop her off. I had a bag packed with a game (Oregon Trail - Card version), my cousin's IPad to watch Netflix, pjs (just in case), meds, and more.
I gave the tot a hug goodbye and we headed to the hospital. I was nervous, but still feeling as calm as I could be attempted. Kevin dropped me off at the main entrance while he parked the car. Once he picked out a spot he joined me and we took the long, confusing, and winding hallway back to the oncology wing. We signed in and immediately I was taken in for vitals.
I knew that they would be accessing my port, taking blood, blood pressure, and <gulp> ... weight. Once everything else was done besides accessing the port, my blood pressure must have shot through the roof. I was twisting and squeezing my hands. I had put on a numbing cream on the port, but I could feel the RN touching it. It gave me little hope that it wouldn't hurt due to the bruising of the surgery.
Tears rolled down my cheeks and the hand ringing persisted as I just kept saying, "I don't know what to do." I truly felt that I was going to leave and say, "Forget the chemo, I can't do it." The pain I imagined was horrifying. The last few months I had new experiences and was told that the pain wouldn't be so bad, and it turned out to be worse. Most of it could be my fear or so I thought at the time.
When I finally decided to tough it out and do it, every nerve tingled with fear and anticipation. But, it truly didn't hurt. Now, in retrospect, I felt confident that the other moments weren't heightened by my fear, it truly hurt. It doesn't make me feel better about any upcoming need for IVs that don't access my port.
After the catheter was placed, my fiance and I were then led back to an exam room to meet with a nurse and then the other doctor on staff, for a preliminary exam before going back to infusion. That too a wee bit longer, as I had not met him before and he wanted to get caught up on me. My main doctor booked solid and tends to be on the days that I want for treatment. Good thing, this whole office works as a team.
Now was time to go back to the infusion room...nope, they were backed up so we went to the lobby again and waited for a chair and the medications to be ready. In the meantime, I could have coffee!!!! And I got to put a lunch order in. It looked delicious.
A half an hour later we were led back to the infusion room. I was looking forward to watching Netflix, but I was worried once more about what pain I might feel. The nurse reassured me that there would be no pain with any of the meds she administered.
And there were quite a few meds that they would be giving me prior to the actual actual chemo. And several flushes in between. When all was said and done the chemo was 30 minutes, but all the other meds were about an hour and a half. We got there at 1000 am and left at almost 300 pm. (Oh and by the way, the food was not as tasty as it sounded. Not bad, just bland)
I enjoyed the show The Mist, until I realized that a certain producer from the news was on the credits. Ugh! Guilt in watching. And then there was the wonderfully soothing company of my fiance- oh and the massaging chair of course.
Once the port catheter was removed, they then attached another machine that will give me an injection in 27 hours from the removal of the catheter. This will help pump up my blood counts as they will take a dive in a couple of days. And I get to start nausea meds and steroids, and other things once I see how I feel.
I almost cried some more when they were going to do the med machine due to the fear of the unknown pain again. Thankfully, this did not hurt either.
On the way to pick up my girl, I felt okay until after we got home. Then down hill with the illness, I went. Nothing horrible. Just dizzy, nauseated, and tired, even with taking the nausea pills. I took the stronger one, which brings on headaches. So more meds. Due to all of this, I'm home again today to see how I react before the next treatment.
My plan is to return tomorrow afternoon after the counselor appointment. I have mentioned this before, but the meeting tomorrow is something they want us all to do and are happy when we decide to do this.
I intend to be at work all next week, but this weekend is Melina's very small celebration of her birthday and I'm hoping I have the energy to make it a good one for her.
I also worry about when the hair will fall out. Most times I can put a funny spin on it. Some people get my sick twisted humor, but a lot don't. The last couple of days, however, I feel many fears coursing through me and it's not so easily shut off. I'm also so tired, but cannot sleep. I've been up since 200 am.
Yesterday, when I really struggled the most with the idea of pain (one thing I heard from my that was Jacob's biggest fear as well), I sat in the exam room with Kevin and tried to pull myself together. A nurse came in and handed me a hand knitted or crocheted shawl/blanket with a cross ornament and a Bible verse attached. I couldn't help (even now) tear up and think it was Jake's way of sending me comfort.
Well enough of that mushy stuff. It's time to move on with the day and get some rest...
A compilation of short stories. Either, fiction, non fiction, or a combination of both. This could be a heart felt drama, humorous, or a thriller type story. Hope you enjoy!
Tuesday, November 7, 2017
Friday, November 3, 2017
Hell Week...EDIT: Hell Week...Runner Up
I know. I know. I just posted. This week was a series of appointments, so a lot to cover in one entry, but I'm giving it a shot to get everyone caught up.
I go back and forth and I find myself panicking and then I'm fine. I'm back to panicking lately, as I mentioned in the previous post.
So many side eff....I'm getting ahead of myself as usual. So, let's start with Monday.
Monday, October 30th - This was the day that I went in for a MUGA test. It's a more detailed test of your heart. We could have done an echo, but again, not as comprehensive and thorough. So I left work to pick up my mom and we headed over to the hospital. It didn't take long to get called back to radiation, get an IV set in my arm, while they put radiation into a sample vile of my blood that she took. Then they sent me out to wait with my mom. Once the radiation was settled, they put my blood back into me and set me up in a more open version of an MRI.
It went quickly and flawlessly, and almost painlessly. Once again, I returned to the lobby while I waited to be called for a chest xray. That took all of five minutes. (This was actually scheduled for today, however, since I was there they said they could get me in quite easily) And then we were on our way home.
Tuesday, October 31st - Once more, I left work around the same time as Monday and again I picked up my mother and we headed back to the hospital. On this day, we had a chemotherapy class to attend. It turned out to be just my mom and me and a couple of the oncology nurses. I liked the privacy of it all. I was feeling a little insecure thinking other people would be there with me.
In a small conference room they had a slide show set up and booklets for both my mother and myself. We went through everything together and of course, chatty Kathy me, I asked questions throughout through the entire "seminar". Some I would needed to save for the Doctor and others they were able to answer.
Once again, the treatment I received upset my mom comparing what they didn't do for Jake, at another hospital. And I felt bad too. He could have benefited from a class like this and I'm appalled that they didn't offer him most of the services I'm being offered.
Wednesday, November 1st - Chemo port placement day...Ugh!
I instantly regret searching for pictures of these ports because some were gruesome and now all I can do is feel this thing in me. Shudder shudder shudder...the shuddering will likely never stop.
It went very similar to the day we went in for the lumpectomy, except we did not go to the breast center first. But the place we needed to go was under construction and it was still dark and confusing. It didn't take long before I was angry and upset and swearing. Leading up to this moment was the car ride with my fiance to my mom's. We had to drop of the darling daughter and pick up my mother. But in the car, I couldn't shake the feeling of doom and gloom, like something bad would happen during surgery.
I had the same feeling before the lumpectomy. I was scared. And I still am. We finally found the right entrance into the building and got all signed in. I went through all the same motions as last time, but this time I was able to have my mom and my fiance in the room with me. Last time, it was one at a time. Before anyone would be allowed in, the IV in my hand was to go in. I declined the numbing solution because it hurt so much during the last procedure. I should have taken it. The IVs in my inner elbow never hurt, but the hand...man oh man. Tears rolled down my cheeks and my toes curled and my legs kicked. And then the sobbing. Fear mixed with pain and I fell apart, taking the nurse with me. She immediately felt bad and talked about trying to do it again, but there is no way I wanted to that. "Just don't touch it" was all I said.
The surgery was over in 10 seconds...to my frame of my mind anyway. And once again I was sent on my way home, to rest. Easier said than done. I haven't had much sleep in quite a while.
Thursday, November 2nd - The second consultation with the oncology Doctor. This would be the day that the MUGA and chest Xray would be discussed and then I would be told (based on those tests) which treatments I could choose from. Luckily, both tests came back good. I was a little surprised on the heart, I haven't taken great care of it over many years. Lack of working out, smoking, enjoy high fattening foods, and etc. Not to mention the family genetics are not on speaking terms with the family. My dad's side has a very high propensity for heart disease and attacks.
Then, we went over the percentages one more time as far as the difference certain treatments would make and again went over side affects and medications that I would need to be taking at home.
So I chose the most aggressive form of chemo. Again...CLOSE THAT GAP! So I will begin chemo on Monday. I will do this every other week for 8 weeks. At the end of that time I will take a different chemo for 12 weeks, every week. And then finally, I will do radiation for 6 weeks, 5 days a week. After each chemo treatment I will need to get a shot the next day to help blood counts go back up as well. I have to be wary of infection, neuropathy, fevers, and so much more. I'm worried that I will miss something.
I'm also worried if the chemo treatments will hurt. They gave me a cream for the port so I wouldn't feel anything during the treatment, but I'm unsure how to put it on if I can't take the surgical tape or steri strips off for at least 7 to 10 days. I'm afraid to shower as well, but I'm sure everyone else is afraid of me NOT showering.
It's a lot of the unexpected. And the bright side, I can bring a friend to sit with me the 4 or 5 hours that the treatments take. I don't see that I will be given the same option my brother was given for the at home chemo treatment. That's fine, I feel more comfortable with the professionals close enough to shout to if there is a problem.
After all was said and done, I was to rest some more. But it should be no surprise by now, that still hasn't happened. I'm having a hard time sleeping. I picked up all of the meds that I will need to start next week and even things like press and seal saran wrap for the port. It's a lot of head swimming. The doctor also told me that I would possibly get chemo brain...not too dissimilar from pregnancy brain. However, I don't think my brain can take the hit. I didn't recover from pregnancy brain.
And hair loss will likely begin about 2 or 3 weeks after the chemo starts. I will definitely be taking it very easy all weekend. And likely start to panic on Sunday night.
I go back and forth and I find myself panicking and then I'm fine. I'm back to panicking lately, as I mentioned in the previous post.
So many side eff....I'm getting ahead of myself as usual. So, let's start with Monday.
Monday, October 30th - This was the day that I went in for a MUGA test. It's a more detailed test of your heart. We could have done an echo, but again, not as comprehensive and thorough. So I left work to pick up my mom and we headed over to the hospital. It didn't take long to get called back to radiation, get an IV set in my arm, while they put radiation into a sample vile of my blood that she took. Then they sent me out to wait with my mom. Once the radiation was settled, they put my blood back into me and set me up in a more open version of an MRI.
It went quickly and flawlessly, and almost painlessly. Once again, I returned to the lobby while I waited to be called for a chest xray. That took all of five minutes. (This was actually scheduled for today, however, since I was there they said they could get me in quite easily) And then we were on our way home.
Tuesday, October 31st - Once more, I left work around the same time as Monday and again I picked up my mother and we headed back to the hospital. On this day, we had a chemotherapy class to attend. It turned out to be just my mom and me and a couple of the oncology nurses. I liked the privacy of it all. I was feeling a little insecure thinking other people would be there with me.
In a small conference room they had a slide show set up and booklets for both my mother and myself. We went through everything together and of course, chatty Kathy me, I asked questions throughout through the entire "seminar". Some I would needed to save for the Doctor and others they were able to answer.
Once again, the treatment I received upset my mom comparing what they didn't do for Jake, at another hospital. And I felt bad too. He could have benefited from a class like this and I'm appalled that they didn't offer him most of the services I'm being offered.
Wednesday, November 1st - Chemo port placement day...Ugh!
I instantly regret searching for pictures of these ports because some were gruesome and now all I can do is feel this thing in me. Shudder shudder shudder...the shuddering will likely never stop.
It went very similar to the day we went in for the lumpectomy, except we did not go to the breast center first. But the place we needed to go was under construction and it was still dark and confusing. It didn't take long before I was angry and upset and swearing. Leading up to this moment was the car ride with my fiance to my mom's. We had to drop of the darling daughter and pick up my mother. But in the car, I couldn't shake the feeling of doom and gloom, like something bad would happen during surgery.
I had the same feeling before the lumpectomy. I was scared. And I still am. We finally found the right entrance into the building and got all signed in. I went through all the same motions as last time, but this time I was able to have my mom and my fiance in the room with me. Last time, it was one at a time. Before anyone would be allowed in, the IV in my hand was to go in. I declined the numbing solution because it hurt so much during the last procedure. I should have taken it. The IVs in my inner elbow never hurt, but the hand...man oh man. Tears rolled down my cheeks and my toes curled and my legs kicked. And then the sobbing. Fear mixed with pain and I fell apart, taking the nurse with me. She immediately felt bad and talked about trying to do it again, but there is no way I wanted to that. "Just don't touch it" was all I said.
The surgery was over in 10 seconds...to my frame of my mind anyway. And once again I was sent on my way home, to rest. Easier said than done. I haven't had much sleep in quite a while.
Thursday, November 2nd - The second consultation with the oncology Doctor. This would be the day that the MUGA and chest Xray would be discussed and then I would be told (based on those tests) which treatments I could choose from. Luckily, both tests came back good. I was a little surprised on the heart, I haven't taken great care of it over many years. Lack of working out, smoking, enjoy high fattening foods, and etc. Not to mention the family genetics are not on speaking terms with the family. My dad's side has a very high propensity for heart disease and attacks.
Then, we went over the percentages one more time as far as the difference certain treatments would make and again went over side affects and medications that I would need to be taking at home.
So I chose the most aggressive form of chemo. Again...CLOSE THAT GAP! So I will begin chemo on Monday. I will do this every other week for 8 weeks. At the end of that time I will take a different chemo for 12 weeks, every week. And then finally, I will do radiation for 6 weeks, 5 days a week. After each chemo treatment I will need to get a shot the next day to help blood counts go back up as well. I have to be wary of infection, neuropathy, fevers, and so much more. I'm worried that I will miss something.
I'm also worried if the chemo treatments will hurt. They gave me a cream for the port so I wouldn't feel anything during the treatment, but I'm unsure how to put it on if I can't take the surgical tape or steri strips off for at least 7 to 10 days. I'm afraid to shower as well, but I'm sure everyone else is afraid of me NOT showering.
It's a lot of the unexpected. And the bright side, I can bring a friend to sit with me the 4 or 5 hours that the treatments take. I don't see that I will be given the same option my brother was given for the at home chemo treatment. That's fine, I feel more comfortable with the professionals close enough to shout to if there is a problem.
After all was said and done, I was to rest some more. But it should be no surprise by now, that still hasn't happened. I'm having a hard time sleeping. I picked up all of the meds that I will need to start next week and even things like press and seal saran wrap for the port. It's a lot of head swimming. The doctor also told me that I would possibly get chemo brain...not too dissimilar from pregnancy brain. However, I don't think my brain can take the hit. I didn't recover from pregnancy brain.
And hair loss will likely begin about 2 or 3 weeks after the chemo starts. I will definitely be taking it very easy all weekend. And likely start to panic on Sunday night.
A Wig Shoppin' We Will Go
One of the bright sides to having cancer, is the fun adventure of going to a wig shop and trying on different wigs. I mean I expected it would be a good time. And my expectations were met.


These are photos from their primary location. I went to their secondary shop, but still roughly the same, with lots and lots of other items to browse through as well. Their secondary location is more of a touristy downtown area, so very important to sell the tourist trap items that have little to do with their main product. Like tiny rubber spatulas. I really wanted one. And who doesn't need a tiny cheese grater? So many wonderful items. Facial masks, scarves, tiny silicon bowls, and jewelry. I could go on and on, but the adventure was about hair, not these other things. I'm guessing geared towards fairies or hobbits based on size. :)
I had arrived at the store ahead of my cousin, Jen, so I went in and met with the consultant, Sara. Jen and I had attempted to do this the Wednesday before, but there was confusion on the scheduling. We were scheduled at the primary location and arrived at the secondary. Oops. It wasn't a total loss, we did have a brief happy hour.
Anyway, before Jen came in Sara showed me around and they had many, many wigs. I felt comfortable and almost excited to find one. She brought me all the way to the back to a salon station, which is when Jen arrived and Sara then caught her up to speed.
Right away I picked out 5 to 6 different wigs and tried on all of them. There were heat-resistant wigs, synthetic wigs, hand woven, machine woven, partially hand and machine woven, and human hair wigs.
Surprisingly, I didn't like the human hair wigs. Maybe somewhere inside lay my vanity where I thought my own real hair was nicer than the hair I was seeing on the mannequin heads. So I then went to the synthetic. I tried on a couple of heat resistant ones that were styled, but I felt that many looked too short for some reason. (Likely because they were styled and I just couldn't envision them without the styling)
The hardest part of trying on wigs when you have all of your hair, is that you have all of your hair. I will be wearing this wig when I don't have any hair, so it will fit different. And they can thin it out as well if you want. And the second hardest part, is picking one. I liked two a lot. Similar color and neither heat resistant. But one was more wedding driven and the other every day. I definitely will be going this weekend to get the everyday, I hope.
I now am going through moments of panic right now at the upcoming treatments and it's hard to keep those feelings in all of the time. I've been thinking a lot about my brother and how I have this rare window or opportunity to now know what he went through, whether I want to or not. I know what I have is different, but my heart breaks even more for what he went through. And it's pouring out onto my Facebook. Before I get to Trump level, I might want to have my fiance monitor my posts.
It also makes me think of people in our lives, both mine and Jake's and how some never said a word to him, to me, to us...as if we just didn't exist. Even if we were family. But I can't dwell on that. I have to move forward and stop feeling sorry for myself because those people will always be self-absorbed and I will only drive myself crazy wanting or expecting more from them.
Sunday, October 29, 2017
First Date with the Oncologist
Ten days have passed since my last appointment. The appointments slowed down for a little while, so that was nice. While it lasted, that is. After meeting with the oncologist this past week, I'm fully aware that this little adventure is about to pick up steam again.
I left work to pick up my mother so she could help me remember all the things they might tell me during the consultation. It's also nice not going to these appointments alone and sometimes you just need your mom. This appointment seemed like it would be a breeze though. It was a consultation. I had no expectations of needles or tests. I envisioned sitting in his office discussing the chemotherapy treatment plan. Maybe sipping on some kind of beverage.
We arrived early and I got a cup of tea. They used real coffee mugs!? So very trusting of their clientele. I hadn't even had a sip of my drink before they called my name. No office, as I imagined. It was an exam room. Ugh. Okay, maybe they just preferred these conversations in the exam rooms. I mean it was a consultation, there should be no needles, right!?
First a young nurse took my blood pressure and then another nurse joined us in the exam room. The first nurse left. (Trying to remember people's names during all of this will be impossible, I've already met so many). After going through a series of questions, the second nurse then left me to sit with my mother and wait for the doctor. I figured that this meeting wouldn't last too long. I mean, "Here is the plan. Go on about your way." The appointment started at 1245, mind you, so I planned to be out of there by 145 or 200?
My mom and I sat chit chatting about random things. I realized that, even though I talk a lot and quickly in my normal day to day life, the level of chatter had increased dramatically. Clearly, I was nervous.
The doctor finally came in and proceeded to ask some of the same questions regarding the history. It seemed to be par for the course, repeating my entire history for everyone. But, as I mentioned, I was in a chatty mood.
He stated that I would definitely need radiation. I had a lumpectomy and since I had that instead of a mastectomy, having radiation would ensure my prognosis would be the same as if I had a mastectomy. Okay. Then the chemo talk. It was another moment where the ball was in my court on what we should do. To stick with that analogy, I passed it back. I wanted their advice on what his medical professional opinion was as far as what we should do next. I felt and feel ill equipped to make those decisions. Honestly, I can do research til I'm blue in the face, but at the end of the day he is the one that went to school for this. He is the one that has been doing this for 21 years. I needed his professional opinion. Which he was more than fine to give me, in a sense. We took the long way though.
Sometimes I wonder if I should have just gone with the radiation. But here are a couple of things I found myself explaining to other people so they understand why I'm doing what I'm doing. Many people think chemo is bad or worse than the illness. I get that. In a lot of ways it is, but statistically it has been proven that chemo works very well with breast cancer. Especially, triple negative breast cancer.
Some people ask why I wouldn't just have the double mastectomy. According to my doctors, my survival rate is the same. So if they removed all of the cancer and I do the radiation, it's not necessary. I tested negative for the BRCA genes. So again, no reason to go that route. And my mother did not have breast cancer or never had it before. (knock on imaginary wood) My grandmother did, but because she was not a direct link to me and she was in her 60s when diagnosed, they did not feel this would constitute a worrisome connection to me.
You also must understand, I may not say things exactly right, but the point is correct. None of these things will change my survivability. And then I thought about odds. I had a 1 out of 8 chance of having breast cancer in the first place and I got it (based on the above). (probably even less because of my age) I had a 25% chance of the biopsy producing cancer results. I had/have cancer. I had a 10% to 20% chance of having triple negative breast cancer. Ding! Ding! Ding! Got that too. So when I look at the 12% odds of NOT surviving 5 years and 17% chance of NOT surviving 10 years, I want to close that gap. Whatever is in my power, to the best of my ability.
Without chemo (based on all my specifics) I have 88% chance of a 5 year survival and 83% of a 10 year survival. With a milder form of chemo these numbers raise to 90ish and 85ish. However, with the most aggressive form of chemo, known as AC + T or the Red Devil plus Taxol, I have a 92% and 87%. Again, I want to close the gap.
The other good news is that in 2007, triple negative survivability was 77% instead of 88%. Perhaps in the next 3 to 5 years where I really need to be worried about a recurrence, they will have found or uncovered more treatments to help get me closer to 100% survival, no matter the stage.
This all sounded good. But again it's not fully up to me. There would be tests. That is when the disappointment really set in. I was being told to disrobe from the waist up and put on the gown. Ugh! Really!? And then told after that I would need a blood draw. NO!!! One appointment. I did manage to avoid the flu shot. He brought it up in the consult, but forgot at the end.
Also, I was told that before they could decide on which chemo to use, they needed to test my heart strength as the red devil will weaken it. (This is where the type of chemo may not be up to me) So I need an IV dye in my arm. Scheduled for Monday. A chemo class on Tuesday. Port "installation" (sounds like a cable company) on Wednesday. I then meet with the oncologist again on Thursday, have a chest xray on Friday and another blood test on the following Monday. Oh and let's not forget the counselor appointment on the 8th. And chemo hasn't even begun....Blah!
I disrobe and he returns to do an exam, check my breathing and etc. He asks my mother if I've always been like this. I assume he means the incessant rambling. She confirms that it is true, I'm a jabber jaw.
Then I'm dressed again and being thrown booklets, brochures, and more paperwork than I know what to do with. Including freezing eggs as the aggressive chemo will likely make me infertile. However, it doesn't really matter. We can't afford that procedure anyway and my insurance doesn't cover enough to make it affordable.
Then the patient navigator comes in and goes over the "Angel Foundation". It's all things for my daughter and helping her cope. Counseling, classes, dolls, markers, and even the possibility of tickets to ice capades and a free summer camp of some kind.
I did get a pink pillow for my port to place between my port and the seat belt, but I explained that the pink pillow would likely be commandeered by my four year old, so she retrieved a more "boring" pillow and stuffed the pink one in the blue little back pack they brought out with the rest of her things.
I found I can even attend a make up class and get some free cosmetics in the process. I love make up, even though I don't wear it often.
We left with even more paperwork and the string of appointments scheduled and headed to Cowboy Jack's for a quick bite before I picked up my daughter from my mom's. We walked through the door. I laughed and said, here I was trying to find the perfect wig in preparation for the hair loss coming my way and I should have just come here instead.
Wednesday, October 18, 2017
Post Op Appointment 10/17/2017
I’m not sure why this post is harder to write than the others so
far, but it is. I have started and stopped writing. I have deleted paragraphs
and started completely over, as I’m doing right now. I have wept for others and
for myself. I have even lost interest in my own writing. I’m all over the map
emotionally and I need to pull it together to share the next leg of this
journey. I may have lots of time to write in the near future, it all depends on
how the next course of treatment affects me.
Yesterday, was it yesterday? It seems longer than that. Anyway,
yesterday, I went back to the Breast Center in Maplewood. To my relief, I was
in the right building this time, yet it didn’t feel right. Though, it’s the “new” Breast Center” the
office I go to is shared with a vascular office. It makes it slightly confusing
and most patients don’t appear to be there for potential breast issues. Some, sure, but most, no. It would appear
vascular or surgical in nature for the most part.
Anyway, I stood in line to check in, still sore from surgery. The office was pretty full at 145 in the afternoon, and there were two or three people in line ahead of me. An overweight,
older man, who struggled to breathe points at me with his cane from a chair
nearby. He informs me that he was in line in front of me, behind the pregnant lady who now stood next in line. He definitely seemed to need the chair, but it felt a
little bit aggressive. I blew it off with a nod and an okay.
I also am waiting in line to wait for an appointment
where we will potentially discuss the pathology of my surgery. I'm a ball of nerves. Have been for days. Dreading the results and what horrible news I might get. All the horrible what ifs from the days following the surgery had yet to stop circling my brain. His "aggressiveness" could have been just me being overly sensitive. Though I doubt it.
I stood there alone and nervous and at the same time just wanting this appointment over and done with. My mother is in
the building across the street having her own mammogram done.
Since my mother’s appointment was before mine I had dropped her off and headed over to my building. I was about 45
minutes early and we both assume she would likely be with me before I even went in for my appointment. I sat down, after having checked in, and waited patiently by playing the Witch Bubble Saga game on my phone. I, as
usual, was not doing well. (Once you get past the first 30 levels, it really ups it's game on difficulty..or is it 50 levels? Either way, it's not as easy as it starts out). Just as I was about to lose my last life, (you get 5 ever 22 minutes or so) I was
called in by a nurse I had never met before. And it was ahead of schedule! I guess I was going in alone, but how can I argue with getting in sooner than later?
It wasn’t long before the doctor was in the room examining her handy
work from the surgery. Happy with the healing thus far, we moved over to the
chairs to discuss the results of the pathology. (Halfway through my mother arrived and we did a little catch up for her benefit.)
As I mentioned in a Facebook post, there was good news and bad news. They did, in fact, remove all of the cancer. Even the 8 millimeters of invasive cancer that had gotten out of the milk ducts, they had removed. I’m guessing (without the pathology report in hand) this would be what they call "the margins". No cancer in the margins. No cancer in the lymph nodes they removed either. Clean bill of health. But before you put on your dancing shoes and that party dress, I was reminded that I was young (shut up...young for breast cancer), that I had triple negative receptors, and a portion had gotten out of the ducts. I will not be avoiding chemo or radiation. I will have to do both.
I will have a port installed, like cable, on November 1. I meet with the oncologist sometime next week to discuss the course of treatment. To my horror, I just now learned that a port doesn't mean you escape pain of needles...so what is the point? Frustrating, to say the least.
Anyhoo, my first thought, was okay that’s fine. I’ll get to live either way.
The Dr said that with or without chemo my prognosis was very, very good, but no
doctor that she could think of would NOT recommend chemo because of those other facts.
Then I thought, the wedding. It’s true, the doctor confirmed that
I would be lucky to have peach fuzz by May 19th. (that is an "attractive" picture - peach fuzz...on this mug?) So I will need to
go wig shopping and hat shopping and scarf shopping.
Another friend stated he lost a lot of weight on chemo..hmm…so
another hopeful bright side. But the
pain, the illness, the hair loss. If I were to lose hair on my legs, arms, arm pits, "face", that all would be well and good, but the idea of losing my eyebrows, eyelashes, and head hair..not good.
But I shan't look a gift horse in the mouth. I won't truly complain about this outcome, especially considering what it could have been. I guess, what it still could be down the road, but hopefully not. However, I will remain scared of the procedures, chemo, radiation, and needles.
A little "before" chemo picture, to see how my hair changes when it grows back. Like how much will be silver? I don't actively dye my hair, but maybe more than I have now will come back that silver color? If it is a lot, I will likely be at the salon a lot more than I am now.
Thursday, October 12, 2017
Surgery 1 Down - Hopefully The Last One To Go
It was a cool night in the garage on Tuesday. As I sat there amongst friends, I tried not to think about the next day and what was going to happen. I had this strange fear of not waking up from the surgery due to some unknown allergic reaction to the anesthesia or something else gone wrong. Very much not realistic, I'm sure. I get that. The panic resumes, so friends and family being there gave me a great distraction.
We went to bed early that night. A restless sleep. We had to be up bright and early and I wanted to shower. My favorite prima stayed the night too, but drove separately to the hospital. My step mom arrived before us. I had a great support team with them, including my wonderful fiance. I was anxious when we arrived 10 minutes late to The Breast Center and it didn't take much to unravel when we discovered were at the wrong building. I was rude and childish and knew it. In the parking lot, I apologized to the others for ranting and it only took moments for us to get where we needed to be. After receiving a wonderful present from my sisters and step mom I was whisked away to another room. I had to leave Kevin behind when I tried to take him with. I wasn't anticipating that. I began to panic more as he offers comfort to me more than anyone else.
The staff was beyond friendly and soothing, but I really needed him. They all independently told me I was in excellent hands with my surgeon. Can't argue with 28 years of experience and most of that breast surgeries. After changing out of my top and into a hospital "shirt" that kind of choked me a tad, I was led to a room with one medical chair that had a high back. I was seated and prepped for a dye that would be inserted into the right breast with a <gulp> needle. Though I had been warned about the potential for stinging pain from the "medicine" they called it, I was assured that it wasn't as bad as a hornet's sting. Sadly, I've never been stung by a hornet. Reminiscent of the biopsy which was compared to dental needles and in that circumstance I also realized, I had no true experience with dental needles, so no basis of comparison. I only had one said injection and I never felt it because the dentist was a magician. However, based on my memory, I do know that he wiggled his hand around quite a bit, so I should have realized with the Radiologist meant by that comparison. And in this case, I have been stung by a ground bee once (and only once...some people might get that humor). And perhaps again, I should have realized when she gave me the comparison, that it's not the initial sting, but rather the burning that never quits for 8 hours. So in hindsight, not as bad as a hornet or ground bee.
When I'm scared (generally before a surgery) everything seems to hurt more. The needle went in (I thought) and it wasn't too bad, but then I felt the needle more or was it the stinging of the medicine or dye. I squeezed the sides of the chair and cried out quietly. I couldn't wait for that to be over as I knew I still had at least one more needle coming for the IV. The burning didn't last long, yet the tears were still flowing. Once more they oozed sweetness, but real sugar not fake.
I was then led over to the building next door while they showed my entourage where to move their cars to get closer to the new building. The newest nurse or front desk person took me through an underground hallway that undergoing some kind of construction, but I had my fancy hospital robe and my own pajama pants to made me feel a little more secure and I avoided walking under any ladders. I'm fairly superstitious.
I then sat in front of another reception desk while I waited for her to finish up with another patient and waited for the others to join me. More paperwork followed. We were then led to a much smaller and private waiting room (also seemingly under construction) and once more waited for a new nurse to lead me to the next part of the procedure. She arrived about a half an hour or so later and collected me while moving my family back out into the big waiting room. Another patient would soon be taking my place in the private one. That's fine the thing that looked like a fridge, wasn't. Just a tease. I grew more and more parched.
Se led me into a bathroom, which sat inside what felt like a utility room that contained lockers and couple of offices...(construction everywhere) and changed my clothes per her directions. And then the fun part, I saw a plastic cup with a lid (seriously? okay). It was a miracle considering I had nothing to eat or drink since midnight and it was roughly 900 AM at this point. Once I was dressed in new clothes -- no pants, no robe, but a longer gown that closed in the back? Huh? This confused me a little bit considering where the operation was taking place. Then they showed me how the front opened with snaps for the surgery. Okay, that makes sense. I was also gifted nifty socks that I wouldn't slip in. It brought me back to when I was in the hospital having Melina. Lots of those socks.
They took me back to another room where they finally put the IV in. Another painful adventure. The numbing solution was another one of those stinging solutions and hurt quite a bit. Normally needles don't bother me, but again the fear made the pain worse. After the IV was inserted and for the second time I was told the needle wasn't in there anymore, as if it would hurt less. It's a much bigger plastic tube in my vein...a thin needle sounded less painful. Anyway, I digress, she went back to get Kevin and I couldn't stop the tears. No sobbing, just tears rolling down my cheeks. I was so scared. I was looking forward to having the doctor come in and knock me out. I couldn't take thinking about it anymore.
Kevin stroked my hair and we just sat in silence for awhile. After watching blood boiling news, we switched and my step mom sat in for the rest of the time. We chatted and watched news and held hands. I tried to keep the tears at bay. Easier said than done.
Finally, it was time. The Anesthesiologist's nurse came in and put some concoction into the IV (Oh I did have to go to the bathroom at some point as I didn't go from 900 til this point around 1130 and I didn't want to wet the operating table). She attached the vile and then put my hair up in a cap, then wheeled me back after I said good bye to my step mom. I was brought into the operating room and I helped them as I scooted over onto another table. Something else was attached to the IV and the nurse told me for the second time that I would sleep and she would be there the whole time. Like one of my previous nights out on the town...it got hazy and I only remember waking up to someone calling my name. Wait...that last part of the sentence is not part of the drinking nights...I just realized what that sounded like. I simply meant that...
Ah forget it, let's move on. Once I was fully awake I was ready to high tail it out of there, but there were still things I needed to do and they wanted to make sure I wasn't dizzy. I was determined to leave as soon as possible and eat a ton of food. I was starving. It was almost 200 or thereabouts. I, like my grandmother after her mastectomy at the age of 80 was ready to go bowling that same Sunday and swung her arm around, but I was ready to sit out for lunch in my pjs. Both ideas were a no go. My Aunt quickly stopped my grandmother from risking ripping her stitches and my family put the kabosh on lunch and a cocktail. Party poopers. To bed I was to go. The lovely post op nurse gave me a hug before I left for my chariot with Kevin. Char headed home and Maria headed to her kiddos.
The news from the Doctor came to the entourage before I was awake. They took one lymph node for a biopsy and it looked a little bumpy and swollen but nothing terribly worrisome and they took the lump, but they really won't know until the pathology comes back to be sure if it spread or not. I guess I'm waiting to hear. Another node seemed spongy but not to the point where she felt the need to remove. At least not now. I believe radiation will be next, but again, pathology could change our course for the worse or for the better. I'll keep you posted.
Monday, October 9, 2017
Surgery Up Next - Breast Cancer
It's been a long week. A tiring week. Last night was the worst for me, to date. I'm not sure if it was the contrast of such a wonderful weekend, that led up to last night and caused reality to crash back down onto me. Or maybe, it's just the impending surgery and the fear that is slowly creeping into my heart.
I can't remember which day it was, but I had grown impatient waiting for the MRI results. I called after a day of waiting and miraculously the surgeon called me back, without much delay. She didn't seem to have terribly bad news, but it also felt like no news. My impatience returned when I realized we didn't know much more than before.
She did state that the lump was bigger than they suspected, but nothing "huge" and that there a prominent lymph node, but again, nothing too worrisome, other than the suspicion of it moving out of the ducts. The part that perplexed me was the next part where she said it was up to me if I do nothing, opt for a lumpectomy, or possibly more. I was at a loss for words.
How on earth was I to make this decision? I'm not a doctor. And I'm too close to it to make the decision that is actually best for me. I hesitated and she picked up on it. She brought up the aspect of my hesitation as her reason for suggesting a lumpectomy. I also told her that I wanted her advice. Given the choice, it was too big. Too scary.
We talked though it and decided on a lumpectomy this Wednesday. The closer it gets, the more scared I am. I feel sick to my stomach. I'm afraid of what "it's" going to look like afterwards, but I'm afraid of the injection of dye before the surgery and how much that will hurt. This doesn't mean I won't need a mastectomy or even a bi-lateral down the road. It definitely doesn't mean I won't need chemo or radiation either.
With all this in my head, it really isn't taking long or much for people to piss me off or for me to see the insensitivity of some people. I want to let all of them have it, and some I kind of have, but then I get mad at myself because I back down. I even check with my wonderful fiance when I get mad. "Am I nuts or is that totally mean and messed up that this person did this?" And he would honestly agree that it was and I have every right to be upset. So why, in the position I now find myself in, do I continue to let people push me around?
All I can do is try harder. Try to stand up for myself and if someone wants to turn it back on me and make me feel bad, they don't need to be in my life anymore. See...I'm still seething from this weekend. Maybe it's better than being sad and depressed. It's a very extreme reaction but I just don't want complicated right now. Everything else is so immensely complicated.
Wednesday, October 4, 2017
The Treatment Plan and More Waiting... - Breast Cancer
I feel like my heart is racing while I sit at my desk watching the time tick by before I meet with my Breast Cancer surgeon. I'm scared to death of everything right now. I feel like I'm sweating, but I'm not. I feel like I can't breathe, but I am.
Part of me wants to leave sooner, so I can get to my mom's sooner, so I can relax before we head out. I'm also predicting a slight competition on the note taking. The only way I can really follow what's going on, in general, is to take notes. However, I want us both (my mom and myself, if not even my cousin Maria), to be taking notes as well.
My fiance will be at home waiting for a call and I will not go home until he deal with the other fear of mine. There is a giant bee or wasp in our house. How that rat bastard got in the house in the first place perplexes me... (UPDATE: he got the WASP trying to hide in my black tennis shoe..that would not have been pleasant to find while trying to put on my shoes to workout. Okay, who are we kidding, the risk wasn't high).
Okay, back on topic.
Flashing forward now. I left work full of anxiety and met my mom and my cousin Maria and we prepared to meet the Surgeon to discuss the results of the biopsy further as well as what was to come. The first fun thing to happen was upon our entry into the brand new breast center in Maplewood. This center had apparently opened that very day. Immediately upon entering a woman approached us to help direct us. She quickly tried to redirect us to St. John's because the breast center WASN'T opened yet. I was very confused and read off the address and suite I was given.
She then matched my look of confusion and took on one of panic. "I think I might have just sent someone to the wrong place." I sighed in relief and then told her not to worry, she would be back.
I proceed upstairs with my "entourage" and check in for my appointment. Can I ask why I must be weighed every single time I go to the doctor? This is not good for my self esteem.
A nurse comes out very shortly and calls my name and leads us on a little jaunt to a brand new exam room and takes down information. The standard information that you give. (I was fortunate enough to fill out the questionnaire online, so I didn't have to do this when I got there). She departs after instructing me to undress from the waist up and and put on a gown. I need to keep reminding my cousin Maria not to peek.
Within moments the doctor is back in the room and does a brief exam of both just to get an idea herself and she feels it. We were given so much information during that consultation it would make you head spin. My mom wrote furiously and apparently Maria just remembered everything. At first I knew most of everything she was saying and then after the preliminary came the detail.
The long and short of it is many whatifs. First, I need to have an MRI done and a genetic test for the breast cancer gene since I'm young and there really isn't family link. Yes, my grandmother and great grandmother, but since no one else in the family has had this issue as of yet, and my grandmothers were much older when diagnosed, it didn't play into genetics in their opinion. (Most likely Melina will need to have mammograms at 29 years of age.)
If the MRI didn't show that the cancer has moved out of the ducts and into other tissue, then she would most definitely scheduling a surgery. Hopefully it will be a lumpectomy. Then we can get the FULL pathology from the core biopsy already done and discuss next steps. However, all three of us got the distinct impression that the Doctor would be very surprised if it hadn't become invasive because NORMALLY with my type of cancer you wouldn't feel the lump before it had become invasive. If it has, we also had the impression that we would be looking at a different type of surgery, mastectomy. And finally, there is the real possibility that if the gene test shows a mutation then a bi-lateral (double) mastectomy could be the answer. This would happen because the chances of the other breast developing cancer becomes very high. I'm really okay with that. I want to be around to see my daughter's kids and I'm not that invested in my breasts that I would choose them over a life with her. Though they are pretty awesome, strangely the right one has begun to feel foreign on my body. (The only time I agree with the current administration on dealing with foreigners, is in this very specific moment....get out!)
The Doctor was knowledgeable and honest and even had insight into my brother's cancer and said things that his doctors refused to say when they should have. There wasn't much that would have saved Jake. That was the reality.
She left the room and another nurse arrived to schedule the MRI. Another wonderful thing, radiology wanted to schedule the MRI for the 16th! All three of us looked at her and immediately she told them that they needed to squeeze me in before that. So 800 am this morning it was. I was relieved. If it hasn't moved, I don't want to give it three weeks to do so.
I left feeling a little better. Especially since the Doctor had said that the best "worst" case scenario would be fake boobs and wig by the time of my wedding. I can definitely live with that. Not to mention I'm trying on dresses this Saturday, so I shouldn't have to worry about the dress looking too different.
Now, I sit here at home after a very long day trying to process everything. More waiting now as I wait for the Doctor to review the MRI and tell me what she found and when the surgery will be. Again, I'm fairly confident that no matter what, I'm having surgery next week along with a sentinel biopsy on a lymph node. Luckily I will be unconscious for, seeing how the biopsy I already experienced was not pleasant and another not painless IV today during the MRI. Not to mention an MRI where I felt like I was on a milking machine. It's not easy to explain by any means.
I was on my stomach, raised, with my "boobs" in two holes. After being squeezed into the tube (since there is less room in this particular MRI) I laid there for 20 minutes or more until they finally released the dye and another 20 minutes or more. I felt the powerful magnet numerous times on my low back and worried about what that might doing to my body. I tried not to cough or move, but every time it started up again and the magnet pulsated on my bum, I jerked a bit. (and not in a good way)
An hour or more later I almost jumped for joy in the tube when I heard a door open. I knew this nightmare was almost over and just before claustrophobia set in.
We then headed over to the Genetic testing, but went to the wrong floor and wrong place. Back down one more floor (and I was kind of dizzy after the MRI) and finally found the cancer wing. This was a hard place to be. It scared me and broke my heart all at the same time to see those people coming in for a chemo treatment. I calmed myself and thought I'm here for a blood draw and then we can leave and eat.
The genetic testing lady came and retrieved me and I left behind my mom and Maria in the waiting room. Can't go anywhere without my entourage, you know. As soon as we sit down, (a student is also there) I realize pretty quickly this isn't just a blood draw. This will be another hour or more of information and family history before the test.
When I've given all the details I know I get my mom and Maria so they wouldn't worry and they join me for the rest of the meeting. I had at this point decided against the blood draw but the saliva test. You know when they swab your with a Q-Tip, like on all the cop shows, and your done....NOPE. You have to repeatedly spit (gross) into a tube until it's full. My mouth was already dry. Fun times.
But here I am, exhausted emotionally and physically. My wonderful fiance will be collecting my daughter and I can rest, after I take care of this and FMLA paperwork that is. I apologize for the writing today. I didn't have the time to be overly creative. But while in the genetic meeting I did find the opportunity / window to plug my book and give away a business card. That's what you get for seeing my email address and asking if I'm a writer.
Part of me wants to leave sooner, so I can get to my mom's sooner, so I can relax before we head out. I'm also predicting a slight competition on the note taking. The only way I can really follow what's going on, in general, is to take notes. However, I want us both (my mom and myself, if not even my cousin Maria), to be taking notes as well.
My fiance will be at home waiting for a call and I will not go home until he deal with the other fear of mine. There is a giant bee or wasp in our house. How that rat bastard got in the house in the first place perplexes me... (UPDATE: he got the WASP trying to hide in my black tennis shoe..that would not have been pleasant to find while trying to put on my shoes to workout. Okay, who are we kidding, the risk wasn't high).
Okay, back on topic.
Flashing forward now. I left work full of anxiety and met my mom and my cousin Maria and we prepared to meet the Surgeon to discuss the results of the biopsy further as well as what was to come. The first fun thing to happen was upon our entry into the brand new breast center in Maplewood. This center had apparently opened that very day. Immediately upon entering a woman approached us to help direct us. She quickly tried to redirect us to St. John's because the breast center WASN'T opened yet. I was very confused and read off the address and suite I was given.
She then matched my look of confusion and took on one of panic. "I think I might have just sent someone to the wrong place." I sighed in relief and then told her not to worry, she would be back.
I proceed upstairs with my "entourage" and check in for my appointment. Can I ask why I must be weighed every single time I go to the doctor? This is not good for my self esteem.
A nurse comes out very shortly and calls my name and leads us on a little jaunt to a brand new exam room and takes down information. The standard information that you give. (I was fortunate enough to fill out the questionnaire online, so I didn't have to do this when I got there). She departs after instructing me to undress from the waist up and and put on a gown. I need to keep reminding my cousin Maria not to peek.
Within moments the doctor is back in the room and does a brief exam of both just to get an idea herself and she feels it. We were given so much information during that consultation it would make you head spin. My mom wrote furiously and apparently Maria just remembered everything. At first I knew most of everything she was saying and then after the preliminary came the detail.
The long and short of it is many whatifs. First, I need to have an MRI done and a genetic test for the breast cancer gene since I'm young and there really isn't family link. Yes, my grandmother and great grandmother, but since no one else in the family has had this issue as of yet, and my grandmothers were much older when diagnosed, it didn't play into genetics in their opinion. (Most likely Melina will need to have mammograms at 29 years of age.)
If the MRI didn't show that the cancer has moved out of the ducts and into other tissue, then she would most definitely scheduling a surgery. Hopefully it will be a lumpectomy. Then we can get the FULL pathology from the core biopsy already done and discuss next steps. However, all three of us got the distinct impression that the Doctor would be very surprised if it hadn't become invasive because NORMALLY with my type of cancer you wouldn't feel the lump before it had become invasive. If it has, we also had the impression that we would be looking at a different type of surgery, mastectomy. And finally, there is the real possibility that if the gene test shows a mutation then a bi-lateral (double) mastectomy could be the answer. This would happen because the chances of the other breast developing cancer becomes very high. I'm really okay with that. I want to be around to see my daughter's kids and I'm not that invested in my breasts that I would choose them over a life with her. Though they are pretty awesome, strangely the right one has begun to feel foreign on my body. (The only time I agree with the current administration on dealing with foreigners, is in this very specific moment....get out!)
The Doctor was knowledgeable and honest and even had insight into my brother's cancer and said things that his doctors refused to say when they should have. There wasn't much that would have saved Jake. That was the reality.
She left the room and another nurse arrived to schedule the MRI. Another wonderful thing, radiology wanted to schedule the MRI for the 16th! All three of us looked at her and immediately she told them that they needed to squeeze me in before that. So 800 am this morning it was. I was relieved. If it hasn't moved, I don't want to give it three weeks to do so.
I left feeling a little better. Especially since the Doctor had said that the best "worst" case scenario would be fake boobs and wig by the time of my wedding. I can definitely live with that. Not to mention I'm trying on dresses this Saturday, so I shouldn't have to worry about the dress looking too different.
Now, I sit here at home after a very long day trying to process everything. More waiting now as I wait for the Doctor to review the MRI and tell me what she found and when the surgery will be. Again, I'm fairly confident that no matter what, I'm having surgery next week along with a sentinel biopsy on a lymph node. Luckily I will be unconscious for, seeing how the biopsy I already experienced was not pleasant and another not painless IV today during the MRI. Not to mention an MRI where I felt like I was on a milking machine. It's not easy to explain by any means.
I was on my stomach, raised, with my "boobs" in two holes. After being squeezed into the tube (since there is less room in this particular MRI) I laid there for 20 minutes or more until they finally released the dye and another 20 minutes or more. I felt the powerful magnet numerous times on my low back and worried about what that might doing to my body. I tried not to cough or move, but every time it started up again and the magnet pulsated on my bum, I jerked a bit. (and not in a good way)
An hour or more later I almost jumped for joy in the tube when I heard a door open. I knew this nightmare was almost over and just before claustrophobia set in.
We then headed over to the Genetic testing, but went to the wrong floor and wrong place. Back down one more floor (and I was kind of dizzy after the MRI) and finally found the cancer wing. This was a hard place to be. It scared me and broke my heart all at the same time to see those people coming in for a chemo treatment. I calmed myself and thought I'm here for a blood draw and then we can leave and eat.
The genetic testing lady came and retrieved me and I left behind my mom and Maria in the waiting room. Can't go anywhere without my entourage, you know. As soon as we sit down, (a student is also there) I realize pretty quickly this isn't just a blood draw. This will be another hour or more of information and family history before the test.
When I've given all the details I know I get my mom and Maria so they wouldn't worry and they join me for the rest of the meeting. I had at this point decided against the blood draw but the saliva test. You know when they swab your with a Q-Tip, like on all the cop shows, and your done....NOPE. You have to repeatedly spit (gross) into a tube until it's full. My mouth was already dry. Fun times.
But here I am, exhausted emotionally and physically. My wonderful fiance will be collecting my daughter and I can rest, after I take care of this and FMLA paperwork that is. I apologize for the writing today. I didn't have the time to be overly creative. But while in the genetic meeting I did find the opportunity / window to plug my book and give away a business card. That's what you get for seeing my email address and asking if I'm a writer.
Monday, October 2, 2017
Hurry Up and Wait is the Game...but For Now the Waiting Can Wait - Breast Cancer
Waiting…waiting…waiting. Everyday has
been waiting…waiting…waiting. One of the first things people told me has been
that the waiting would be the worst. They weren’t kidding. All of the things I’m
learning. I’m discovering what so many women, or people in general, must have
felt when they were diagnosed with any kind of cancer.
The panic. Ever ache and pain creates an immense panic
that I immediately try to tamp down because that could be counterproductive to
my health, as well. My arm has hurt since before I found this lump, is this
related or is this not? And, if it’s not, is this a whole new separate
cancer? My stomach has had shooting
pains before I found the lump. After numerous blood tests and scans, they found
nothing, not as far as the gall bladder was concerned anyhow. Same questions apply.
Waiting…waiting…waiting. Should we be
waiting like this? If there is suspicion of this thing trying to move, wouldn’t
we want to get started all the more sooner? I realize that there are women in
worse shape than me and the urgent scheduling of appointments are most likely
reserved for those women. I understand.
But I can’t help but to think selfishly and want to get in there and get this
going.
There is talk about procedure and
process. First, you do this and then you
do that. I get it, I’m not doctor, not even close. If you don’t’ have to lose the breast, then
why would you want to? I guess because I would hate to find out too late that
we in fact cannot save the breast and because we didn’t take it right away, now
it’s spread out of control. Once again, all of this is continuously rolling around
in my head 24/7. I’m wondering if waiting a week for the consultation after the
diagnosis will give this cancer too much time to grow. I would rather just have
them both (my breasts) gone and get upgrades.
I have these wonderful moments, when I’m
dreaming, and this isn’t my life. For a few minutes when I first wake up—before
I open my eyes, I forget that this is my life.
There are other moments when I’m interacting with people and it’s easy
to push it to the back of my mind, even though it’s still there. And, there are other moments where I can’t
stop thinking about it.
Before I get too far into the sad
parts of all of this, one piece of good news came today. I decided to call the
Doctor and check to see if there were any cancellations. Indeed there were. I am now going in tomorrow at 1:00 p.m.,
instead of waiting until Friday. I will
spend the evening compiling a list of questions. As if I haven’t been thinking
of them this whole time though, right?
Thursday, September 28, 2017
The Diagnosis - Breast Cancer
Well, things didn't go as I had planned. I received a call, fin...let me back this up actually. I was told I would hear on Wednesday. All day I sat at my desk waiting for my work phone to ring. When I left my desk I would take my cell phone with me. The call never came. Every half an hour that passed I would cross that time off my personal calendar.
I sat there (I had to work an hour late to make up time from the biopsy appointment) at my desk staring at the clock on my computer, realizing it was now 5:00 p.m. and most doctor offices were now closed. I felt perplexed. All day people felt it was a good sign that I hadn't heard yet. It wasn't an urgent issue for them, they believed. I started to believe it too. Now, as I sat there looking at the time turn to 5:01, I wondered, why would they promise to call me no matter what and not?
I picked up my desk phone and called the number on the form that radiology gave me. Someone answered!!!!!!! Hallelujah!
"I had a biopsy there on Monday and was told I would hear by today and no one has called me." Instant dejection when her response was, "Your primary doctor will be the one to call you."
She asked me my date of birth and spelling of my last name as she clicked and clacked on the keyboard of her computer to see if the test results had yet been sent. Turned out, they had. To both my OB (who did the initial exam) and my GP (who wasn't involved at all).
I felt desperate and angry. I left emails for both offices since they were closed.
The next morning, I sat at my desk, checked my emails and my medical chart online. No responses and no voice mails. Once more I picked up my phone, before 800 and left a voicemail with the triage nurseline at my OB's office.
Two more hours pass by and still nothing. This time I called my GP's number and left a message with reception to call me. Hope began to well up in me that if they weren't calling me, it had to be nothing. Wrong.
My phone finally rang and I picked up it expectantly. She said, Hi Karen, this is so and so. Blah and blah and blah and unfortunately....my heart sank.
It didn't hit me until I started taking notes on the cancer type and other things. While it was a very common, possibly the most common breast cancer and an "early" cancer, the Grade and receptor status weren't. It began to feel fear like I never had in my entire life. That was when the tears began to roll and I couldn't speak without choking up. Inside, I'm begging for someone to tell me that it will be fine and I won't die, outside I'm asking this nurse if I'm going to die, but of course I know she can't answer that question. No one can.
I picture my brother, his face contorted in fear and grief as he lay in his hospice bed, crying. I'm panicked and desperate. I just want to go home. I don't want to talk to anyone or do anything, but I have to get connected with Occupational Health because there will be appointments that I need covered by FMLA. I'm thinking all of this as I continue to write and ask questions that I have already forgotten. My appointment with the doctor is October 6th, unless someone cancels and I can get in sooner. I may just meet with her or the Oncologist first or something like that. It's all wing dings to me. (computer nerds should get that). So here I go. No scary made up stories of a killer on the loose in the woods. I guess this will be the blog for now, a scary story of a very real tiny monster on the loose inside of me.
Wish me luck.
I sat there (I had to work an hour late to make up time from the biopsy appointment) at my desk staring at the clock on my computer, realizing it was now 5:00 p.m. and most doctor offices were now closed. I felt perplexed. All day people felt it was a good sign that I hadn't heard yet. It wasn't an urgent issue for them, they believed. I started to believe it too. Now, as I sat there looking at the time turn to 5:01, I wondered, why would they promise to call me no matter what and not?
I picked up my desk phone and called the number on the form that radiology gave me. Someone answered!!!!!!! Hallelujah!
"I had a biopsy there on Monday and was told I would hear by today and no one has called me." Instant dejection when her response was, "Your primary doctor will be the one to call you."
She asked me my date of birth and spelling of my last name as she clicked and clacked on the keyboard of her computer to see if the test results had yet been sent. Turned out, they had. To both my OB (who did the initial exam) and my GP (who wasn't involved at all).
I felt desperate and angry. I left emails for both offices since they were closed.
The next morning, I sat at my desk, checked my emails and my medical chart online. No responses and no voice mails. Once more I picked up my phone, before 800 and left a voicemail with the triage nurseline at my OB's office.
Two more hours pass by and still nothing. This time I called my GP's number and left a message with reception to call me. Hope began to well up in me that if they weren't calling me, it had to be nothing. Wrong.
My phone finally rang and I picked up it expectantly. She said, Hi Karen, this is so and so. Blah and blah and blah and unfortunately....my heart sank.
It didn't hit me until I started taking notes on the cancer type and other things. While it was a very common, possibly the most common breast cancer and an "early" cancer, the Grade and receptor status weren't. It began to feel fear like I never had in my entire life. That was when the tears began to roll and I couldn't speak without choking up. Inside, I'm begging for someone to tell me that it will be fine and I won't die, outside I'm asking this nurse if I'm going to die, but of course I know she can't answer that question. No one can.
I picture my brother, his face contorted in fear and grief as he lay in his hospice bed, crying. I'm panicked and desperate. I just want to go home. I don't want to talk to anyone or do anything, but I have to get connected with Occupational Health because there will be appointments that I need covered by FMLA. I'm thinking all of this as I continue to write and ask questions that I have already forgotten. My appointment with the doctor is October 6th, unless someone cancels and I can get in sooner. I may just meet with her or the Oncologist first or something like that. It's all wing dings to me. (computer nerds should get that). So here I go. No scary made up stories of a killer on the loose in the woods. I guess this will be the blog for now, a scary story of a very real tiny monster on the loose inside of me.
Wish me luck.
Tuesday, September 26, 2017
Where am I? Where am I going? - Breast Cancer
I laid on the hospital bed in radiology. One breast
partially exposed, with the towel draped over a portion of it. The
same towel that was used to mop up the excess ultrasound gel. One hand feverishly wiped at tears as I registered the news that the ultra sound tech had just delivered and the
other hand lamely tried to keep the gown from falling open. Futile as it was considering I had been exposed already. The nurse had been
out of the room now for 15 minutes at this point and I thought I could wait it out for
the doctor to come in for his turn to take a look for himself, but I couldn’t. I thought of my brother, who just passed away.
Then I thought about my daughter.
What would happen to her if I died from cancer? From Breast Cancer.
I chastised myself for crying and the fact that I had no
real answers at this point.
I swung my legs over the edge of the bed/table and reached to grab my phone from my purse. People were waiting to hear how it went. Not only would they want an update, but I felt the urge or need to reach out and not be alone, like I felt in that moment.
I swung my legs over the edge of the bed/table and reached to grab my phone from my purse. People were waiting to hear how it went. Not only would they want an update, but I felt the urge or need to reach out and not be alone, like I felt in that moment.
As I sent the final message to my fiancé the doctor finally knocked. Then back to the table so he could do another ultra sound. This time I was shown what they were looking at
and what gave them cause for concern. Something about tiny dots and a black
empty void (which is actually the problem area). He also stated that it’s not the typical
benign picture he would see when looking at mammograms and ultrasounds. More tears began to flow as soon as he said, "We
will do a biopsy," and they were going to do it right then and there, if it worked with my schedule. How could it not? Why would I chance it and wait? After going through this with Jake, I realized that every second counted. He didn't think much about the bump on his back. It's not his fault, most of us probably would wait it out, but I learned not to wait it out. If it is cancer and it's aggressive, I need to be aggressive first.
I began to blubber about my brother to them and immediately felt embarrassed, but I couldn't stop the tears and the sobbing. I wanted to know survival rates because I felt like the doctors consistently evaded that question with Jake until it spread to his brain. This blubbering was followed by apologizing for blubbering, but the doctor and the tech
never batted an eye and only offer comfort, the best they could. Once again, I’m
left alone in the room while I send more messages to family and friends. Luckily,
this time the tech is in and out of the room, setting up for the biopsy they are
about to do, which doesn’t sound like something I’m going to enjoy. I’ve never
had a biopsy before, but I ask if it will hurt. The Dr., before he left the room, compared it to a dental appointment. In hindsight, had I fully grasped that comparison, I would have been much more afraid of the anesthesia.
Before they begin, they have me a sign a form stating that they explained to me what they were going to do, which they did. I then laid back on the table. I closed my eyes, after the towels and drape were placed, and kept nervously moving my feet as they continued to prep me for a needle to puncture my right breast and numb the area. (Couldn’t they
give me something to numb me from the numbing procedure?) It did not feel
pleasant. It was painful. A couple of times sharp pain would hit, and the rest of the time strong pressure. I felt like the pain may have been worse because I was so afraid of the unknown. I wondered if I was more sensitive to the pain due to my hyper focus. Once numbed, the Dr. spoke of a clicking noise that might startle me when he actually took the samples. Four to be exact. Then he went back to leave behind a marker clip. This marker would let them know where the biopsy had occurred. I
cringed many times throughout and held my breath. When it was finally over, I
could breathe again.
By that point, my breast had been pulled, squished, pushed
on, and poked and prodded and now I was going to be going back to squishing after
they glued my incision shut. This time they wanted to verify the clip was in
place. And for some reason I needed to pee twice in an hour, which was odd. I
made a few dumb jokes when given an ice pack. Something like, well it is the
smaller of the two breasts, so the ice pack will fit just fine in the bra. (insert
eye roll here). And another joke of the size of that breast and it really couldn't afford to take any more hits. (For those unaware, most women's breast are not symmetrical.)
After all of this, I get back to work after having finished my lunch and I’m
exhausted. I want to take a nap, but before
the tiredness sank in, I took 3 ibuprofen because of the most horrid pain that coursed through
me. They didn’t really warn me about how
bad that would feel. Everyone is
different, but man it hurt all the way to the other side, where they didn’t even
go. My plan was to go right to bed after I hugged my baby and my fiancé, because I
can’t let myself think about all the bad possibilities that might come out of
this. Not today at least. And of course I still need to wait for the results. I'm hoping I end this story with good news.
Wednesday, September 13, 2017
Girls' Trip - The End
Sarah gasped to catch her breath after being jerked
backwards by the hair. She instinctively reached up to rub at the wounded area,
but winced when the barrel of the gun pushed into the side of her head.
“Now, everyone why don’t we all sit down and have a
little conversation about what is going to happen next. First of all—, “ his
head whipped in the direction of the sound of the back door being opened. The eyes of all four women filled with the hope of being rescued.
“Hey, did I miss anything?” Another man sauntered
in with a glimmer of excitement in his eyes that instantly caused a wave of nausea to pass over Sarah.
“Did you get everything?” The man with the gun spoke. Both of the men ignored the women and the hope that disappeared from their faces.
“Yep, and I finished moving their cars just like T
asked, I think we're all set. It'll take awhile before anything is found.”
“Great! So -- where were we--"
“What do you want? You can have all of our money and
we won’t tell anyone,” Dot interrupted. The man with the gun looked at each
woman carefully. He eyes roamed over Dot, Melinda, and
Sarah. After staring directly into
Terry’s eyes, he nodded to the newcomer.
A loud crack tore through the cabin and all four women jumped as the newcomer immediately pulled his arm back and struck Dot
across the face.
Dot, fell over, grunting. She pushed her self up sobbing quietly and gently cradled her cheek in her hand. A small river of blood began to run from the side of her mouth.
Dot, fell over, grunting. She pushed her self up sobbing quietly and gently cradled her cheek in her hand. A small river of blood began to run from the side of her mouth.
“Now, where was I?” Once more, Sarah noticed the man with the gun look at Terry, and this time he smirked.
Terry said she thought she might have known him.
Sarah suspected they did in fact know each other, and what was going on now, was why she fled the bar.
Did they date? Did he stalk her? For how long did she know him? Is he going to punish her by killing all of us? Or worse? What happened between them that led to this? He's probably just nuts, like those characters on Criminal Minds, or real life psychos like on Forensic Files.
Sarah suspected they did in fact know each other, and what was going on now, was why she fled the bar.
Did they date? Did he stalk her? For how long did she know him? Is he going to punish her by killing all of us? Or worse? What happened between them that led to this? He's probably just nuts, like those characters on Criminal Minds, or real life psychos like on Forensic Files.
A loud sigh interrupted her thoughts. She looked right into his eyes. They didn't really reflect any emotion, perhaps annoyance or boredom, Sarah thought.
“You know, maybe I should just skip story telling
time and we’ll get this party started,” He stood up and grabbed Terry roughly
by the arm, yanking her behind him toward the other room. She limped in her attempt to follow him, her foot still bleeding.
She whimpered and cried out.
As Melinda, Dot, and Sarah sobbed, begged, and reached out to help their friend, Terry also cried and begged to be turned loose. They pleas did not go ignored.
As Melinda, Dot, and Sarah sobbed, begged, and reached out to help their friend, Terry also cried and begged to be turned loose. They pleas did not go ignored.
“Get it together! You’ll all have your turn,” the
newcomer oozed. He then produced a gun from the back of his pants.
Sarah knew that her and her three friends
were in the biggest trouble they had ever been in all their lives. For the second time that evening, Sarah,
Melinda, and Dot huddled close together, as the man with a gun, the stranger from the bar, dragged a slobbering, screaming Terry to the middle bedroom and the
newcomer guarded them from escape.
After 20 minutes of silence from not only their room, but from the room where Terry was held, Melinda finally built up the nerve to speak.
“Who are these guys?” Melinda whispered. Dot
fearfully looked at the newcomer waiting to see what would happen when Melinda
spoke. He had no reaction.
“The guy I told you about earlier. It's the same guy from the bar. Terry said she thought she knew him and then
said it wasn’t him. Clearly it was, but why wouldn’t she tell us?”
“I don’t remember her ever mentioning this guy? Do
you guys?” Dot added.
“No,” Melinda and Sarah spoke at the same time.
“Not before tonight, when we saw him at the bar." Sarah leaned in closer, "And who is this T person they mentioned? When will he get here?”
“SHUT UP!” The newcomer shouted.
Sarah’s stomach swirled in fear and she wondered
what was happening with Terry. Why hadn’t
she screamed out this whole time? Was
she dead?
They all looked up when the bedroom door creaked
open slowly. The newcomer turned his
back to speak with the stranger from the bar. Sarah became jittery and watched
them closely. As he inched closer to the other room, Sarah whispered, “I
might try to run for help, it’s our only shot. If we have a shot.” The other two hesitantly nodded.
He took another step as the two men spoke in low
voices. His body stood halfway in each room. She braced herself, her muscles tense. One more step in and she knew she might have
a shot, or they would.
The newcomer leaned an inch further into the room to
look at something and Sarah pounced. She hit the door and barreled through
it. Screams from her friends chased after her, but she couldn’t determine if it was screams of pain or encouragement. Then one of the
men yelled out “T!!!!!!!!!!” at the top of his lungs. That one could understand, he was calling for back up.
She didn’t want to stop to look around for the third
mystery man, she had to get help. She flew down the porch steps and onto the
black top sidewalk path that led back to the bar. She just needed to be faster
than "T" and hopefully faster than anyone else that would try to hurt them.
She was only a mere 50 outside the cabin when she heard a snap in the darkness, like the branch of a tree. She slowed her run, her heart racing.
She was only a mere 50 outside the cabin when she heard a snap in the darkness, like the branch of a tree. She slowed her run, her heart racing.
“Sarah!” A familiar female voice called out to her from the darkness.
Now she merely walked quickly as she looked ahead of her, seeking out where the voice came from. Was that from the trees? She glanced to the left, but didn't see anything, at first.
Sarah’s eyes squinted, trying to see in the dark in the hopes of making out the figure that now presented itself to her.
“Terry, is that you? How did you ---" She stopped
her approach to Terry and took one step back. “---get away?” Her voice drifted because she already had the answer. Based on the Terry's reply, her face must have given it away as well.
“Yeah, I know.” Terry emerged from the trees with a
gun of her own, blocking Sarah's path to freedom.
Sarah's mouth fell open and her heart sank deep into her swirling stomach. She could think of nothing more to say, except to ask one question.
“Why Terry!?” a single tear rolled down her cheek.
Sarah never flinched when the stranger from the bar snuck up behind her, wrapped both arms around her middle, arms included, and pulled her backward, slowly. She continued to look at the woman who used to be her friend, waiting for an answer.
“Why not? Now the party is a surprise party.
Surprise!” Terry winked at her and threw her head back in laughter, as the
stranger from the bar pulled her back to the cabin without any further fight from
Sarah.
The hope that had faded from her face an hour ago, now seeped out from every last pore in that moment, as she knew it would be her last.
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